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</o:shapelayout></xml><![endif]--></head><body lang=IT link="#0563C1" vlink="#954F72"><div class=WordSection1><p class=MsoNormal>Gentili componenti della lista<o:p></o:p></p><p class=MsoNormal><o:p> </o:p></p><p class=MsoNormal>vi invito gentilmente a rispondere al questionario al seguente indirizzo <a href="https://rebrand.ly/ACCESS-EU-ITALIAN" target="_blank">https://rebrand.ly/ACCESS-EU-ITALIAN</a> e a diffonderlo nei vostri network.<o:p></o:p></p><p class=MsoNormal><o:p> </o:p></p><p style='margin:0cm;background:white'><span lang=EN-US style='font-family:"Arial",sans-serif;color:#106470'>Team di ricerca: Dr. Joyce Man, Dr. Rosie Holt, Dr. Amber Ruigrok, Dr. Carrie Allison, Dr. James Cusack, Aurélie Baranger, Kathryn Gibbs e Professor Simon Baron-Cohen</span><span lang=EN-US style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span lang=EN-US style='font-family:"Arial",sans-serif;color:#106470'>E-mail: </span><span lang=EN-US style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'>autismpolicyresearch@medschl.cam.ac.uk<o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span lang=EN-US style='font-family:"Arial",sans-serif;color:#106470'> </span><span lang=EN-US style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><strong><span style='font-family:"Arial",sans-serif;color:#106470'>Qual è lo scopo di questo studio? </span></strong><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'>Lo studio si propone di confrontare l’accesso globale da parte di persone autistiche e dei familiari che prestano loro assistenza a una serie di servizi, nonché le loro esperienze nella fruizione degli stessi. Tra questi (a titolo esemplificativo, ma non esaustivo): i servizi sanitari e di salute mentale, l’assistenza sociale, le prestazioni terapeutiche, i servizi per l’impiego e i servizi didattici. La maggior parte del sondaggio verte sulle esperienze in materia di accesso al servizio in generale negli ultimi 2 anni. Vista la situazione attuale, al termine del sondaggio sono state aggiunte alcune domande sui servizi connessi all’emergenza COVID-19.</span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'>Il sondaggio è stato formulato in due versioni: una destinata agli adulti autistici di 16 anni o più, l’altra per le persone che prestano assistenza a una persona autistica. Se sei autistico/a e al tempo stesso presti assistenza a una persona autistica, puoi completare sia la versione del sondaggio per te stesso/a, sia l’altra versione come membro della famiglia di una persona autistica di cui ti prendi cura.</span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'> </span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><strong><span style='font-family:"Arial",sans-serif;color:#106470'>Vogliamo scoprire:</span></strong><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'>1. L’effettiva offerta di servizi destinati a persone autistiche e a chi presta loro assistenza</span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'>2. Il livello qualitativo di questi servizi</span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'>3. Le eventuali differenze sostanziali in termini di accesso ai servizi e qualità nei diversi Paesi europei.</span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'>I risultati di questa ricerca verranno utilizzati per formulare delle raccomandazioni per i responsabili politici e per migliorare globalmente l’accessibilità ai servizi per le persone autistiche. </span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'> </span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><strong><span style='font-family:"Arial",sans-serif;color:#106470'>Chi può partecipare? </span></strong><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'>A) Persone autistiche che abbiano compiuto 16 anni</span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'>B) I familiari (che abbiano compiuto 16 anni) che prestano assistenza a una persona autistica di qualsiasi età</span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'>Possono partecipare al sondaggio gli individui (o chi presta assistenza) che hanno ricevuto una diagnosi formale di autismo, i soggetti con autodiagnosi e/o in attesa di essere valutati da un servizio di diagnosi per l’autismo. </span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'>La partecipazione al sondaggio è facoltativa e il partecipante può ritirarsi in qualsiasi momento. </span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span lang=PT style='font-family:"Arial",sans-serif;color:#106470'> </span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><strong><span style='font-family:"Arial",sans-serif;color:#106470'>Cosa comporterà il sondaggio? </span></strong><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'>Per completare il sondaggio online occorreranno circa 20 minuti. Le risposte fornite non consentono di risalire all’identità del partecipante. </span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'> </span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><strong><span style='font-family:"Arial",sans-serif;color:#106470'>Cosa ne sarà dei risultati del progetto di ricerca? </span></strong><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'>I dati anonimi raccolti saranno analizzati e i risultati saranno riportati in report, articoli scientifici, pubblicati in riviste soggette a valutazione <em><span style='font-family:"Arial",sans-serif'>peer reviewed</span></em>, presentati in conferenze e utilizzati per attività di formazione. I risultati vengono presentati con riferimento a gruppi di individui. Nel caso in cui vengano presentati dati individuali (ad es. citazioni tratte da caselle di testo libero), non verrà utilizzata alcuna informazione che consenta di risalire all’identità del soggetto che ha fornito la risposta. Qualora il partecipante decida di interrompere la propria partecipazione in qualsiasi momento durante il sondaggio, non saremo in grado di ritirare i dati già immessi fino a quel momento.</span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'> </span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><strong><span style='font-family:"Arial",sans-serif;color:#106470'>Chi avrà accesso ai miei dati? </span></strong><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'>Le informazioni richieste nel sondaggio online sono anonime; non vengono chiesti nominativi, date o dettagli sui contatti. Gli indirizzi di posta elettronica saranno cancellati al termine dello studio. I dati dei partecipanti saranno protetti e conservati su computer dell’Università a cui solo i ricercatori hanno accesso. Tutti i dati raccolti saranno conservati e analizzati conformemente alle disposizioni del GDPR e del Freedom of Information Act (Legge sulla libertà di informazione). I dati anonimi potrebbero essere condivisi con soggetti terzi su richiesta futura a seguito della loro pubblicazione su riviste <em><span style='font-family:"Arial",sans-serif'>peer-reviewed</span></em>. Informazioni generali sul modo in cui l’Università utilizza i dati personali sono reperibili alla pagina:<br>https://www.information-compliance.admin.cam.ac.uk/data-protection/research-participant-data </span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'> </span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><strong><span style='font-family:"Arial",sans-serif;color:#106470'>Chi organizza e finanzia la ricerca? </span></strong><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'>La ricerca viene condotta dall’Università di Cambridge ed è finanziata dall’ente benefico Autism Research Trust e dall’impresa comune (IC) dell’IMI-2 (Innovative Medicine Initiative 2) nell’ambito del grant agreement n. 777394. L’IC beneficia del sostegno di HORIZON 2020, il programma dell’UE per la ricerca e l’innovazione, EFPIA, AUTISM SPEAKS, Autistica e SFARI. Ringraziamo altresì l’ente benefico Autism Research Trust per l’ulteriore supporto. </span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'> </span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><strong><span style='font-family:"Arial",sans-serif;color:#106470'>Parere etico dello studio</span></strong><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'>Lo studio è stato valutato dal Comitato Etico della Ricerca Psicologica dell’Università di Cambridge. </span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'> </span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><strong><span style='font-family:"Arial",sans-serif;color:#106470'>Contatto per ulteriori informazioni</span></strong><span style='font-family:"Arial",sans-serif;color:#106470'> </span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'>Per ulteriori informazioni o eventuali domande in merito a questo progetto, contattare il Dr. Joyce Man al seguente indirizzo: </span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'>autismpolicyresearch@medschl.cam.ac.uk <o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'>Per informazioni sulle indicazioni sanitarie connesse alla COVID-19, consulti i siti del governo del Suo Paese e l’Organizzazione Mondiale della Sanità </span><span style='font-size:10.0pt;font-family:"Arial",sans-serif;color:#0070C0'>https://www.who.int/emergencies/diseases/novel-coronavirus-2019</span><span style='font-size:10.0pt;font-family:"Arial",sans-serif;color:#106470'> </span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'><o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'> <o:p></o:p></span></p><p style='margin:0cm;background:white;box-sizing: border-box;font-variant-ligatures: normal;font-variant-caps: normal;orphans: 2;text-align:start;widows: 2;-webkit-text-stroke-width: 0px;text-decoration-style: initial;text-decoration-color: initial;word-spacing:0px'><span style='font-family:"Arial",sans-serif;color:#106470'>Revisione della traduzione italiana a cura del Professor Filippo Muratori della Dr.ssa Sara Calderoni e della Dr.ssa Eugenia Conti.</span><span style='font-size:15.0pt;font-family:"Arial",sans-serif;color:#106470'> <o:p></o:p></span></p><p class=MsoNormal><o:p> </o:p></p><p class=MsoNormal>cordiali saluti<o:p></o:p></p><p class=MsoNormal>Armando Mazzoni<o:p></o:p></p></div><div id="DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2">
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